Supported Disability Accommodation Services
The Hume Region Aged & Disability Palliative Resource Nurses provides support to staff working in Supported Disability Accommodation Services or group homes to enable them to support and care for people with life-limiting illness and at the end of life.
Support could include but is not limited to providing information about palliative and end of life care, promoting links with community palliative care services and palliative care advice services, accessing suitable training and education resources, assistance with developing and implementing processes to support palliative and end of life care within the group home setting.
For further information contact:
East Hume Aged & Disability Palliative Resource Nurse
Rose Sexton Ph: (03) 5722 5184
West Hume Aged & Disability Palliative Resource Nurse
Samantha Moorhouse Ph: (03) 5735 8070
Resources:
End of life and palliative care for people living with a disability
The Better Health Channel provides end of life and palliative care information for people living with a disability including planning ahead, choosing a preferred site for care, and advance care planning.
End of life and palliative care for people living with a disability
Easy English Resources
Developed by Palliative Care Victoria (PCV) and the Victorian Advocacy League for Individuals with Disability (VALID), Easy English resources is a series of resources that includes images to help the reader. Originally developed for people with an intellectual disability they would also be suitable for anyone seeking easy-to-understand information.
Talking End of Life…with people with intellectual disability (TEL)
The Talking End of Life …with people with intellectual disability (TEL) website gives carers and practitioners the skills, knowledge, resources and confidence to help people with intellectual disability understand the end of life, and make plans for it if they choose.
Fact sheets for staff in disability group homes
The Southern Metropolitan Region Palliative Care Consortium have developed a number of fact sheets for staff in disability group homes who are caring for a resident with a terminal illness.
No 1 What is palliative care (2015)
No 2 Advance care planning (2016)
No 3 Care planning for palliative care (2016)
No 4 Involvement of the coroner (2016)
No 5 Bereavement in a group home (2016)
No 6 Advocating for people with a terminal illness in a group home (2017)
No 7 The process of Dying (2017)
No 8 How to care and listen (2018)
No 9 Care and dying where the resident chooses (2019)
No 10 Consent and decision making for medical treatment (2019)